Author(s):

  • Lupton, Deborah

Abstract:

In this article, I provide some reflections on critical digital health research in the context of Health’s 20th anniversary. I begin by outlining the various iterations of digital technologies that have occurred since the early 1990s – from Web 1.0 to Web 2.0 to Web 3.0. I then review the research that has been published on the topic of digital health in this journal over the past two decades and make some suggestions for the types of directions and theoretical perspectives that further sociocultural and political research could tackle. My concluding comments identify four main areas for further research: (1) devices and software, (2) data materialisations, (3) data practices and (4) data mobilities.

Document:

https://doi.org/10.1177/1363459315611940

References:
Armstrong, N, Koteyko, N, Powell, J (2012) ‘Oh dear, should I really be saying that on here?’: Issues of identity and authority in an online diabetes community. Health 16(4): 347–365.
Google Scholar | SAGE Journals | ISI
Ayers, SL, Kronenfeld, JJ (2007) Chronic illness and health-seeking information on the Internet. Health 11(3): 327–347.
Google Scholar | SAGE Journals | ISI
Bar-Lev, S (2010) ‘Do you feel sorry for him?’: Gift relations in an HIV/AIDS on-line support forum. Health 14(2): 147–161.
Google Scholar | SAGE Journals
Bennett, E, Gough, B (2013) In pursuit of leanness: The management of appearance, affect and masculinities within a men’s weight loss forum. Health 17(3): 284–299.
Google Scholar | SAGE Journals
Boellstorff, T (2013) Making big data, in theory. First Monday 18(10). Available at: http://firstmonday.org/ojs/index.php/fm/article/view/4869/3750 (accessed 8 October 2013).
Google Scholar
Broom, A (2005) Medical specialists’ accounts of the impact of the Internet on the doctor/patient relationship. Health 9(3): 319–338.
Google Scholar | SAGE Journals | ISI
Broom, A, Tovey, P (2008) The role of the Internet in cancer patients’ engagement with complementary and alternative treatments. Health 12(2): 139–155.
Google Scholar | SAGE Journals | ISI
Cartwright, L (2000) Reach out and heal someone: Telemedicine and the globalization of health care. Health 4(3): 347–377.
Google Scholar | SAGE Journals
Casper, M, Morrison, D (2010) Medical sociology and technology: Critical engagements. Journal of Health and Social Behavior 51(S): S120–S132.
Google Scholar | SAGE Journals
Chapple, A, Ziebland, S (2011) How the Internet is changing the experience of bereavement by suicide: A qualitative study in the UK. Health 15(2): 173–187.
Google Scholar | SAGE Journals | ISI
Christie, M, Verran, H (2014) The Touch Pad body: A generative transcultural digital device interrupting received ideas and practices in Aboriginal health. Societies 4(2): 256–264. Available at: http://www.mdpi.com/2075-4698/4/2/256 (accessed 11 July 2014).
Google Scholar
Cimini, N (2010) Struggles online over the meaning of ‘Down’s syndrome’: A ‘dialogic’ interpretation. Health 14(4): 398–414.
Google Scholar | SAGE Journals
Crawford, K, Schultz, J (2014) Big data and due process: Toward a framework to redress predictive privacy harms. Boston College Law Review 55(1): 93–128.
Google Scholar
Fox, N (2015) Personal health technologies, micropolitics and resistance: A new materalist analysis. Health. Epub ahead of print 27 July. DOI: 10.1177/1363459315590248.
Google Scholar | SAGE Journals
Fox, N, Ward, K (2006) Health identities: >From expert patient to resisting consumer. Health 10(4): 461–479.
Google Scholar | SAGE Journals
Fox, S, Duggan, M (2013) Health online. Pew Research Internet Project. Available at: http://www.pewinternet.org/2013/01/15/health-online-2013/ (accessed 12 December 2013).
Google Scholar
Fuchs, C (2014) Social Media: A Critical Introduction. London: SAGE.
Google Scholar | Crossref
Fuchs, C, Hofkirchner, W, Schafranek, M. (2010) Theoretical foundations of the web: Cognition, communication, and co-operation. Towards an understanding of Web 1.0, 2.0, 3.0. Future Internet 2(1): 41–59.
Google Scholar | Crossref
Giles, DC (2014) ‘DSM-V is taking away our identity’: The reaction of the online community to the proposed changes in the diagnosis of Asperger’s disorder. Health 18(2): 179–195.
Google Scholar | SAGE Journals
Goldstein, DE (2000) ‘When ovaries retire’: Contrasting women’s experiences with feminist and medical models of menopause. Health 4(3): 309–323.
Google Scholar | SAGE Journals
Guise, J, Widdicombe, S, McKinlay, A (2007) ‘What is it like to have ME?’: The discursive construction of ME in computer-mediated communication and face-to-face interaction. Health 11(1): 87–108.
Google Scholar | SAGE Journals | ISI
Hayles, NK (2008) How We Became Posthuman: Virtual Bodies in Cybernetics, Literature, and Informatics. Chicago, IL: University of Chicago Press.
Google Scholar
Hipple Walters, B, Adams, S, Broer, T. (2015) Proud2Bme: Exploratory research on care and control in young women’s online eating disorder narratives. Health. Epub ahead of print 13 March. DOI: 10.1177/1363459315574118. Available at: http://hea.sagepub.com/content/early/2015/03/11/1363459315574118.abstractN2
Google Scholar
Hor, S-Y, Godbold, N, Collier, A. (2013) Finding the patient in patient safety. Health 17(6): 567–583.
Google Scholar | SAGE Journals | ISI
Huba, N, Zhang, Y (2012) Designing patient-centered personal health records (PHRs): Health care professionals’ perspective on patient-generated data. Journal of Medical Systems 36(6): 3893–3905.
Google Scholar | Crossref | Medline
Jahns, R-G (2014) The 8 drivers and barriers that will shape the mHealth app market in the next 5 years. research2guidance. Available at: http://mhealtheconomics.com/the-8-drivers-and-barriers-that-will-shape-the-mhealth-app-market-in-the-next-5-years/ (accessed 16 September 2014).
Google Scholar
Keshet, Y (2012) Network gatekeeping: Complementary medicine information on the websites of medical institutions. Health 16(2): 151–168.
Google Scholar | SAGE Journals
Kitchin, R (2014) The Data Revolution: Big Data, Open Data, Data Infrastructures and Their Consequences. London: SAGE.
Google Scholar | Crossref
Kitchin, R, Dodge, M (2011) Code/Space: Software and Everyday Life. Cambridge, MA: MIT Press.
Google Scholar | Crossref
Kitchin, R, Lauriault, T (2014) Towards critical data studies: Charting and unpacking data assemblages and their work. Social Science Research Network. Available at: http://papers.ssrn.com/sol3/papers.cfm?abstract_id=2474112 (accessed 27 August 2014).
Google Scholar
Kontos, E, Blake, DK, Chou, SW-Y. (2014) Predictors of eHealth usage: Insights on the digital divide from the Health Information National Trends Survey 2012. Journal of Medical Internet Research 16. Available at: http://www.jmir.org/2014/7/e172/ (accessed 17 July 2014).
Google Scholar
Latour, B (2005) Reassembling the Social: An Introduction to Actor-Network-Theory. Oxford: Clarendon.
Google Scholar
Lindsay, S, Bellaby, P, Smith, S. (2008) Enabling healthy choices: Is ICT the highway to health improvement? Health 12(3): 313–331.
Google Scholar | SAGE Journals
Lupton, D (1999) Editorial: Health, illness and medicine in the media. Health 3(3): 259–262.
Google Scholar | SAGE Journals
Lupton, D (2014a) Apps as artefacts: Towards a critical perspective on mobile health and medical apps. Societies 4(4): 606–622.
Google Scholar | Crossref
Lupton, D (2014b) Critical perspectives on digital health technologies. Sociology Compass 8(12): 1344–1359.
Google Scholar | Crossref
Lupton, D (2015a) Data assemblages, sentient schools and digitised health and physical education (response to Gard). Sport, Education and Society 20(1): 122–132.
Google Scholar | Crossref | ISI
Lupton, D (2015b) Digital Sociology. London: Routledge.
Google Scholar
Lupton, D (2015c) Donna Haraway: The digital cyborg assemblage and the new digital health technologies. In: Collyer, F (ed.) The Palgrave Handbook of Social Theory in Health, Illness and Medicine. Houndmills: Palgrave Macmillan, pp. 567–581.
Google Scholar | Crossref
Lupton, D (2016) The Quantified Self: A Sociology of Self-Tracking. Cambridge: Polity Press.
Google Scholar
McDermott, E (2014) Asking for help online: Lesbian, gay, bisexual and trans youth, self-harm and articulating the ‘failed’ self. Health. Epub ahead of print 19 November. DOI: 10.1177/1363459314557967.
Google Scholar | SAGE Journals
Manovich, L (2013) Software Takes Command. London: Bloomsbury Publishing.
Google Scholar
Meleo-Erwin, ZC (2011) ‘A beautiful show of strength’: Weight loss and the fat activist self. Health 15(2): 188–205.
Google Scholar | SAGE Journals
Mol, A, Law, J (2004) Embodied action, enacted bodies: The example of hypoglycaemia. Body & Society 10(2–3): 43–62.
Google Scholar | SAGE Journals
Oudshoorn, N (2011) Telecare Technologies and the Transformation of Healthcare. Houndmills: Palgrave Macmillan.
Google Scholar | Crossref
Pitts, V (2004) Illness and internet empowerment: Writing and reading breast cancer in cyberspace. Health 8(1): 33–59.
Google Scholar | SAGE Journals | ISI
Pols, J (2012) Care at a Distance: On the Closeness of Technology. Amsterdam: Amsterdam University Press.
Google Scholar | Crossref
Radley, A, Cheek, J, Ritter, C (2006) The making of health: A reflection on the first 10 years in the life of a journal. Health 10(4): 389–400.
Google Scholar | SAGE Journals
Radley, A, Lupton, D, Ritter, C (1997) Editorial: Health: An invitation and introduction. Health 1(1): 5–21.
Google Scholar | SAGE Journals
Roberge, J, Melançon, L (2015) Being the King Kong of algorithmic culture is a tough job after all: Google’s regimes of justification and the meanings of Glass. Convergence: The International Journal of Research into New Media Technologies. Epub ahead of print 2 July. DOI: 10.1177/1354856515592506.
Google Scholar | SAGE Journals
Rogers, R (2013) Digital Methods. Cambridge, MA: The MIT Press.
Google Scholar | Crossref
Rosenblat, A, Wikelius, K, boyd, d. (2014) Data & civil rights: Health primer. Data & Society Research Institute. Available at: http://www.datacivilrights.org/pubs/2014-1030/Health.pdf (accessed 16 December 2014).
Google Scholar
Seale, C (2006) Gender accommodation in online cancer support groups. Health 10(3): 345–360.
Google Scholar | SAGE Journals | ISI
Shaw, R (2015) Being-in-dialysis: The experience of the machine–body for home dialysis users. Health 19(3): 229–244.
Google Scholar | SAGE Journals
Striphas, T (2015) Algorithmic culture. European Journal of Cultural Studies 18(4–5): 395–412.
Google Scholar | SAGE Journals | ISI
Totaro, P, Ninno, D (2014) The concept of algorithm as an interpretative key of modern rationality. Theory, Culture & Society 31(4): 29–49.
Google Scholar | SAGE Journals | ISI
Van Dijck, J (2013) The Culture of Connectivity: A Critical History of Social Media. Oxford: Oxford University Press.
Google Scholar | Crossref
Veen, M, Te Molder, H, Gremmen, B. (2010) Quitting is not an option: An analysis of online diet talk between celiac disease patients. Health 14(1): 23–40.
Google Scholar | SAGE Journals
Waldby, C (1997) The body and the digital archive: The Visible Human Project and the computerization of medicine. Health 1(2): 227–243.
Google Scholar | SAGE Journals
Waldby, C (1998) Medical imaging: The biopolitics of visibility. Health 2(3): 372–384.
Google Scholar | SAGE Journals
Zamosky, L (2014) Digital health tools are a growing part of workplace wellness programs. iHealthBeat. Available at: http://www.ihealthbeat.org/insight/2014/digital-health-tools-are-a-growing-part-of-workplace-wellness-programs (accessed 2 August 2014).
Google Scholar